Community Spotlight | Digicomm 360
As part of our Community Spotlight series, we’re proud to highlight organisations making a meaningful impact, not just locally, but across the UK.
In this feature, we spoke with Jacqui Cannon, CEO of The Lewy Body Society, to learn more about their vital work supporting people affected by Lewy Body Dementia.
Watch the Interview
We sat down with Jacqui to talk about awareness, support, and why understanding this condition is so important.
What Is The Lewy Body Society?
The Lewy Body Society is a UK charity dedicated to:
- Raising awareness of Lewy Body Dementia (LBD)
- Supporting people living with the condition and their families
- Funding research to improve diagnosis, treatment and care
Despite being one of the most common types of dementia, Lewy Body Dementia is still widely misunderstood, something the charity is working hard to change.
What Is Lewy Body Dementia?
Lewy Body Dementia (LBD) is a complex and progressive condition that affects thinking, movement, sleep and behaviour.
It shares symptoms with both Alzheimer’s and Parkinson’s, which can make it difficult to diagnose.
Common symptoms can include:
- Fluctuations in thinking and alertness
- Visual hallucinations
- Movement difficulties similar to Parkinson’s
- Sleep disturbances
- Changes in behaviour and mood
Because of this complexity, families often face uncertainty and confusion, especially in the early stages.
How The Lewy Body Society Supports Families
The Lewy Body Society provides crucial support for individuals and families navigating the challenges of LBD.
Their work includes:
- Providing trusted information and resources
- Offering support for carers and families
- Raising awareness among healthcare professionals
- Funding groundbreaking research into the condition
Their goal is to ensure that no one facing Lewy Body Dementia feels alone or unsupported.
Why Awareness Matters
One of the biggest challenges surrounding Lewy Body Dementia is a lack of awareness.
Many people, including healthcare professionals, may not immediately recognise the symptoms, leading to delayed or incorrect diagnoses.
By raising awareness, The Lewy Body Society is helping to:
- Improve understanding of the condition
- Support earlier and more accurate diagnosis
- Reduce fear and uncertainty for families
- Drive forward research and better care
A Conversation That Matters
Speaking with Jacqui Cannon highlighted just how important it is to have open conversations about dementia, especially conditions that are less widely known.
Behind every diagnosis is a person, a family, and a story.
The Lewy Body Society is working to ensure those stories are heard, understood, and supported.
How You Can Support The Lewy Body Society
If you’d like to support their work, you can:
- Learn more about Lewy Body Dementia
- Share information to help raise awareness
- Support their research and fundraising efforts
- Attend their 20th Anniversary Event Sat 18th April 2026
Visit their website: https://www.lewybody.org/
Community Spotlight Series
This blog is part of our Community Spotlight Series, where Digicomm 360 shines a light on organisations making a real difference.
From local community groups to national charities, these stories remind us of the power of support, awareness and connection.
Looking Ahead
Thank you for following our Community Spotlight series this April.
Together, we can raise awareness, support one another, and make a lasting impact.
